Dr. Rosemarie Smith, MD

My case has been extra difficult. Hypermobility runs in my family. History of heart problems in my family along with joint issues ,dislocations and dysautonomia. There was a question of Ehlers Danlos,being our family fit it to a tee. She grabbed my injured arm that I begged her to let go and twisted it behind my back. I screamed for her to let go because it was my injured arm. She said if I had Ehlers Danlos it would already be dislocated. She said what happens in my family only happens with EDS and said my problems were caused by mental illness. I was finally diagnosed with EDS in Boston. Another Doctor in Maine guessed I went to her and told me she wasn't a very good doctor. Would never recommend her.

This is one of the only geneticist in our area. We went to their office and spent 1.5 hrs with a 3 year old completing a question survey. After the survey, we saw Dr. Smith. Within 15 minutes we could tell she had not prepared for the meeting and did not know much about our child's condition. She at first attributed the condition to diet (3 of our children have the condition in which they do not absorb enough of a nutrient, NOT that they don't get enough). When we questioned this, as it appeared the results showed they were getting plenty in the diet, Dr. Smith back-tracked and advised that, "You really shouldn't be seeing me, you should be seeing my colleague who knows more about this then me". REALLY.. so WHY are we seeing you? Didn't you know why we were in from the Dr. Referral or mmm REVIEWING our case? No offer was made to reschedule with the other Dr. Smith, and they billed insurance none-the-less. To top it off, this Dr. Smith did not understand the condition enough to… understand that there are two classifications, primary and secondary... our children have secondary.. if they have primary they would need continuous monitoring due to heart failure. Dr. Smith classified them in their medical records as having primary.... just a horrible, horrible experience overall... because the office visit was billed, the insurance would not cover another geneticist appointment simply because "we didn't like the first".