I've been experiencing severe daily headaches and some odd neurological symptoms for ~9 months. My primary referred me to Dr. Carter, who I've been seeing for 7 months now.
The whole experience has been very, very strange. I've seen her over a dozen times, but at each appointment she has forgotten where my headaches are, the key symptoms I'm having...it's bizarre. She also forgets which tests she's ordered and what medications she's prescribed. And, she's prescribed MANY medications, more at every visit, switching me onto this and off of that, even though I keep saying I do NOT want to cover things up with medication - I'm sure something is wrong, heads are NOT supposed to feel like this, and we need to figure out WHY my head is hurting, I'm passing out, etc.
She spends a LOT of time with you, which is great, of course! And she seems really nice and compassionate...at first. The trouble is, I'll explain in detail the very specific, and very consistent symptoms I'm having, but… it's like she's not really LISTENING to me. Everything gets lumped into "anxiety" or "migraine" or, her favorite, "rebound headache".
When I started with her, she ordered a long list of tests. Among them was a cervical spine MRI and an MRA of my brain. I'd had an MRI of my brain, without contast, some months before (prior to these new, severe , very specific headaches) so she did not order one.
Since then, she's insisted all my tests were clear - including an MRI she insists I was given. I've told her no, I'm sure I have NOT recently had an MRI; we've gone round and round on this. I finally insisted to the point she left to check my records. She came back 10 minutes later and confirmed, yes, I'd had an MRI recently and it was clear. Well. no. She was lying. I do not say this lightly or in jest. I truly think she could not admit she was wrong so she lied to me.
After minimizing my problem for months, she finally said I should go to an inpatient treatment center out of state (basically she thinks I'm addicted to painkillers and that "nothing I do will have any effect until you're off pain medicine". I agreed to try this IF she would order a new MRI - if it was clear, I would go.
Well, I got the results last week and it was NOT clear. There's a large (12mm) pineal cyst, in addition to some other minor findings. Um, I need brain surgery, and for months she's been refusing to acknowledge there could be anything going on besides some pain hypersensitivity due to my using too much pain medicine.
(For the record, my G.P. has prescribed a relatively small amonut of opiates to help me survive these horrible headaches, until we could figure out what the problem is. The dosage has NOT changed in 8 months but still, Dr. Carter treats me like some opioid addict. I've told Dr. Carter I would truly, honestly be suicidal without pain medicine - the headaches are that bad. She just gives her rote answer that I must not take any pain medicine more than 2 days a week)
Most importantly, even if a patient DID have addition problems, which I do not...is that any reason for a doctor to discount everything they're telling you? She would not listen and as a result I've gone months with daily, incapacitating headaches when an MRI would have shown (and finally DID show) exactly what was going on.
And...she got the MRI results on Monday (I checked with the company that did the scan). I called several times, but she did not return calls. Finally, on Friday, I went to see my primary care doctor - I had the imaging company send the results to her - and we went over them together. Giant cyst (possibly tumor, but either way it needs to come out) glowing bright white in the middle of my brain.
As of Sunday eve, Dr Carter STILL has not called me back. It's been a full week.
At this point my confidence in her ability to make good decisions is zero and my primary is referring me to a major hospital (OHSU or St. V, depending on who can see me sooner) to make decisions on our next steps. The MRI report stated they think the cyst is impinging on CSF fluid flow, so I need further testing there, to start. Or they may go straight to more aggressive measures (biopsy, surgery.)
I don't know...it's all so scary, I have a young son who needs his mom, I have to be okay. I need to function, need my job. To find out these results, finally an answer, and have a neurologist who won't return calls, and who you don't trust to decide whether you need the CSF fluid movement/pressure test, or what type of surgery...well, safe to say I do not recommend her.
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