Dr. Dinah Thyerlei, MD

It has been about 4 years since I was evaluated by Dr. Thyerlei and the experience still haunts me. I was referred to her by my primary doctor because I was experiencing neurological symptoms that we suspected were caused by dysautonomia. I explained to Dr. Thyerlei that I was having episodes of poor balance/walking into walls, slurring speech and weakness in my hands, etc. Dr. Thyerlei's bedside manner was atrocious and it was clear that she didn't believe anything I had to say, nor did she seem to believe that I have Ehlers-Danlos Syndrome despite having already been diagnosed by a rheumatologist (and later diagnosed again by a geneticist that specializes in connective tissue disorders). How did she know I didn't have EDS? She looked at me and said "your joints look fine." It just got worse from there. She wanted to spend more time telling me how she was "scared for me" because I use THC to treat some of my symptoms than to actually explore why they are occurring in the first place.… Her neurological exam of me was aggressive and rushed. It felt like she was angry at me for having to perform it, snapping instructions out faster than I could respond to them. This culminated in her pulling out a safety pin from her pocket and poking at me to check for sensation. I have no idea if that pin was used on other patients and it certainly wasn't sterile, yet she poked me so aggressively that it pierced the skin on my toe and a drop of blood formed. Having a background in nursing, I was horrified by this. There is no excuse for it. I expressed that my doctor and I suspected that I was experiencing dysautonomia, a common issue with EDS. Dr. Thyerlei rudely told me "dysautonomia doesn't come and go." I relayed this later to my doctor and the look on her face was disbelief before she informed me that she would never refer another patient to Dr. Thyerlei again. I can say without a doubt this was the worst, most psychologically damaging experience I have ever had in seeking care from a doctor. I still break down in tears years later and struggle every time I have to sit down with a new caregiver because I expect to be dismissed and treated poorly. I have continued to deteriorate in health and can no longer work, a fight I was near to losing when I sought Dr. Thyerlei's help. She did absolutely nothing for me, showed not one iota of compassion, then dismissed me back to my primary doctor. I would not recommend her to my worst enemy. No one deserves the experience I had.

Dr. T spent 75 minutes explaining test results, following up on all the various consults that my MIL had done by previous neurologists. She talked plainly without a lot of jargon and was very thorough and direct with her conclusions and instructions. She did not sugarcoat and was clear that lifestyle changes were required for safety's sake but did not get upset at my MIL's inability to accept that it was time to stop driving and to stop having a glass of wine every night. If you want a neurologist who is not just a specialist in a silo but who is able and willing to look at the whole picture/whole person and talk to you straight, then I highly recommend Dr. T.

This provider is changing my mothers medication without even communicating the change to her. My mom is calling me in tears as her medication (not narcotic) helps her live her life comfortably. She offers no other alternatives; I would not recommend this provider.

I just had an appointment with Dr. Dinah a couple days ago and she was amazed me with her experience and very helpful. However, she is a doctor that is so nice that I have ever had before. Her nurse Emma also pretty nice and helpful too! Thank you them both so much! :)

Dr. Thyerlei interrupts a lot and gets off track a lot during appointments. Dr. Thyerlei does not take into account patient history during appointments. She has poor bedside manner and repeated patterns of behavior at follow up appointments. A concerning development during an appointment was Dr. Thyerlei telling me to stop taking a medication she did not prescribe to me; the medication was a SSRI which can have serious implications when ceasing to take. I would recommend finding someone else if possible. She is also very outdated when it comes to CBD.

On 2013, I was paralized waist to down. Beside the inmovility and suffering from intense pain 24/7 my morale was tottaly down. I almost suicide! Dr. Thyerlei not only helps me to walk again. Her professionalism, dedication and emotional support motivating me to re-build my professional and personal life. She know how to use all the necesary tools that will helps on her patients recovery. She is an excellent Neurologist and the only one I ever trust (MSE from Edmonds, WA).

Great experience! Dinah is an expert and is a straight talker no doubt. She gave me the run down, formed a battle plan, and we executed. Vertebral Arterial Dissection with mini stroke healed 100% in 90 days. It was a very scary ordeal but Dinah was always ahead of it. On day one she warned me about all the typical symptoms i will encounter which really put me at ease when they actually came to pass. Her diagnosis was spot on, her treatment was even better. Many doctors will throw drugs at you and call it a precaution. Dinah doesnt play "what if" she takes the data in front of her and works the problem. She doesnt string you along, she doesnt hook you into treatments for the rest of your life; she gets you back on track asap. Book Dinah, pay attention, do what she says, thank me later..

I followed her from UW to the Everett Clinic because she is very thorough and helpful. Great dysautonomia neuro!

I had a horrible experience wth this doctor. She was rude, condescending, she treated every question like an accusation and like my husband and I were idiots. She wasn’t a good listener and I didn’t even feel like she believed what I was going through. Then I asked to get some certain blood work done to test for a few specific things and she faught me every way, it was exhausting. Finally I just switched doctors, I asked for a referral and she said if she gave back one it may take months to be seen, and when I asked for her to write a letter on my behalf she said straight up no in diff wording. The ironic thing about the whole experience is I ended up having exactly what I thought it was, and if I’d taken her advice and just let it be, Id be much more sick that I already am. She couldn’t think outside the box at all and it was like her way or the highway. Not the best attitude for a doctor to have. I’m just glad I kept searching for answers after she completly shut me down.

After years of misdiagnosis and struggles, Dr. Thyerlei is the first Neurologist to take my wifeâ??s condition seriously. She has always provided great information on her treatment and referred us to reference material for us to verify her information. Her care has changed our lives for the better and I would recommend her to anyone with P.O.T.S.